Cancer Book Club & Other Favorite Reads

One of my New Year’s resolutions was to break my technology addiction and my first course of action was banning devices from my bedroom. Instead of watching something on my iPad as I fall asleep, I replaced the activity with reading (real books) and have never felt more well rested, energetic and sharp. It’s made me realized how much I’ve missed reading like I did when I was younger. Plus, I’ve read over 45 books this year!

Naturally, some of these books are about cancer.  They consist of either memoirs or “how-to’s” on surviving. Below you’ll find a random, incomplete list my favorites to-date to serve as suggestions if you’re looking for inspiration.

rufusDie Young With Me by Rob Rufus. Read this if you’re a young adult impacted by cancer, lover of punk music and/or don’t subscribe to the kumbaya-ness that often accompanies illness. Personally, I’m a little partial to this story since Rufus and I both live in Nashville and are cancer surviving writers, who aren’t afraid of a few f-bombs.

When Breath Becomes Air by Paul Kalanthi. It’s sad, it’s profound, but most of all, it’s beautifully written. Read my complete review here.

Dying to Be Me by Anita Moorjani. Read this book if you believe in miracles or want to believe in miracles by a first hand experience.

radzwillWhat Remains by Carole Radzwill. Another weeper, but the prose is incredible. I found this memoir of loss an example of what our caregivers endure along our side because they are often the forgotten trauma survivors.

Crazy Sexy Cancer by Kris Carr. Read this if you are a newly diagnosed woman and/or interested in means of healing through food, alternative treatments, etc. Better yet, watch the documentary or an episode of Carr on Super Soul Sunday.  

41b5V0a3aFL._SX326_BO1,204,203,200_I Have Cancer and Never Felt Better by Tracy Krulik. Check this out if you’re a fellow pNET, especially if you’re about to go into surgery. I devoured this before my distal pancreatomy and it provided me with many important questions I would have not otherwise asked.

Now, this all being said, I have set up some rules for cancer reading, which may not always be a relaxing escape.

  1. Memoirs only before bed. Rule 1a – the person has to be alive. Rule 1b – it can’t be a section where the subject is talking about a similar trauma (chemo, nausea, etc.) Bringing those feelings and memories to the surface have no place in my bedroom.
  2. No cancer reads on vacation. Time away is officially a cancer-free zone in my family.

Don’t want to read about cancer? Yeah, me neither. Here are a few of my favorites:

The Namesake by Jhumpa Lahiri. This is my all-time favorite book, ever. The prose is out of this world and tells the story of an immigrant family’s struggle of retaining their culture versus assimilating to America. If you like this book, Lahiri’s Interpreter of Maladies is also worth the time. It was Lahiri’s first book and won the Pulitzer Prize if you needed any further nudging. There’s also a movie based on The Namesake, which, for the first time ever, does justice to the book.

The Moth Presents all These Wonders: True Stories About Facing the Unknown. Read my complete review here. Okay, so there are a few stories about cancer, but they are happy ones.

patchettCommonwealth by Ann Patchett. God, I love Ann Patchett. She lives in Nashville and owns a bookstore I frequent. Between you and I, I sometimes hang out there just to catch a glimpse of her. I wouldn’t be surprised if she thinks I’m a stalker. I just kind of want to soak up some of her genius by breathing the same air.

Hillbilly Elegy by J.D. Vance. An interesting memoir of escaping and growing up in poor Appalachia.

Behold the Dreamers by Imbolo Mbue. A novel an African immigrant family trying to make it in New York City. While this story is fiction, I think it portrays the sacrifices and lengths that foreigners will go to to achieve the American Dream.

If you’re looking for more suggestions, check out my Goodread’s list, which has the last few years of books with ratings.

Also, my “to-read” list is primarily comprised of recommendations from others, so if you have a book that’s touched your life, please share by commenting below.

Up next in the cancer category is Radical Remission by Kelly Turner, Everyday I Fight by Stewart Scott, A Walk with Purpose by Michael Becker and The Art of Not Giving a Fuck by Sarah Knight.

Happy Reading!

All is Unfair in Cancer and Hurricanes

87WSyMSm

As featured on curetoday.com

Peptide Receptor Radionuclide Therapy (PRRT) is an exciting treatment for Neuroendocrine Tumors (NETs). While considered investigational because of its pending status at the FDA, Europe has performed this therapy with an 80% success rate for over a decade.

When a May Gallium-68 scan found microscopic tumors, my specialist recommended I pursue this treatment.  It took a lot of coordinating, but I was able to access this therapy at a facility in Houston under Texas’s Right to Try law, a preferred option compared to traveling to Europe.

My first treatment went great, leaving me virtually symptom free and slashing my blood tumor marker a whopping 75%. Investigational therapies are not always covered by insurance, so it was also pretty exciting when I found my insurance company paid for the treatment.

Life was looking like sunshine and kittens, so my husband and I decided the next trip to Houston should not be completely about cancer. So, we booked a romantic beach weekend in Galveston before my next therapy, scheduled for August 31st.

Cancer has already taught me to quickly develop back-up plans, so when the Houston clinic called to explain there could be a delay due to the approaching hurricane, I jumped into action, developing a Plan B and Plan C. Little did I know after all the events transpired, I’d end up on Plan F.

Plan A – Fly from Nashville to Houston to enjoy a weekend on the beach in Galveston before returning to Houston for treatment.

Plan B – Take the scheduled flight to Houston, drive to Dallas for the weekend. Return to Houston when the storm passes.

Plan C – Drive from Nashville, stopping to visit Memphis, Little Rock and Dallas, where we would wait for the green light.

Plan D – Reschedule therapy until September 12th, the one week my husband had an important commitment.

Plan E – Get my older brother lined up to take my husband’s place by booking him a flight out of Tampa September 10th. Enter Hurricane Irma.

Plan F – Break my husband’s commitment so he can come with me to Houston and spend the next few days calling airlines, hotels, etc. to reschedule…yet again.

While all of this was unfolding, I could rationalize that it would have been pointless for me to try to enter Houston during the chaos or for my brother to leave his family in the midst of a disaster, but still, it was stressful. Cancer already creates feelings of powerlessness, fear and uncertainty. Piling on more seems unfair. Before I spun into a ball of anxiety, I stopped and gave myself an attitude and perspective adjustment. I am lucky my situation is not critical because there were/are others impacted by cancer who had/will have urgent situations in the midst of these disasters. Rescheduling is a minor inconvenience when a hurricane is barreling toward your home.

As I rationalized and calm myself, I realized the similarities between hurricanes and cancer. Both are natural disasters, with human contributing factors. Both are completely unfair. Both can be devastating by taking everything you have. Both have the potential to create resilience. Both can bring out the best in people. Both create perspective because when we or our loved ones are in danger, the stresses of daily life don’t seem so stressful. And both are reminders that there is so much we can not control.

“If plan A doesn’t work, the alphabet has 25 more letters – 204 if you’re in Japan.” – Claire Cook

Read my others articles with Cure. 

 

Things Are Not Always as They Appear


(Yes, I know it’s long, but I promise it will be worth your time)

I know…
…that surgery and scar on my belly.
…that uncertainty, wondering and wanting.
…that search for the expert and regular trip to New York City.
…that feeling of just not wanting to exist, but to live.
…that desire to have children and not being confident it will happen.
…how to say, fuck it, and keep going when people tell you to slow down.
…wanting to be normal, but also not wanting to be normal.
…the art of balancing cancer treatment and dream chasing.
…wanting to be anxious for something other than cancer.
…rare disease.
…the wait for more research and treatment options.
…getting through and not giving up.

Yes, I know I’m not Gabe or a runner of her caliber. Actually, I wouldn’t even call myself a runner anymore. I don’t personally know Gabe.  I don’t know exactly what she is going through.

But, I do know there is so much I can relate to in her story. And I know there are many out there who can relate. I applaud her openness when it would be so easy to go quietly into treatment. Instead she chose to share and I feel a little less alone and grateful for the stereotype she is shattering.

I also know if you passed her (or I) on the street, you might (incorrectly) assume we are healthy because we are young and fit. Then, once our truth was revealed, you might (incorrectly) assume we should be at home with a scarf covering a bald head, cup of tea in hand, while staring out a window.

Cancer’s teachings are infinite and this documentary of Gabe’s race reinforces a truth I know all to well.  Things are not always as they appear.

 

Gabe Grunewald is a professional runner and an adenoid cystic carcinoma survivor. Follow her on Twitter, Instagram her website.

 

And if you needed more evidence that things are not always as they appear: